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How Do You Tell Someone Something They Don’t Want to Hear?

By Barbara Kares

How do you tell someone something they don’t want to hear? Very carefully and with compassion in your words.

In thinking about the answer to the above question I have two different answers. Those answers depend on who is delivering the information.

Physicians: Nobody wants to hear they can’t be fixed, treatment is no longer working. BUT, it is your responsibility, as a physician, to tell a person whatever “bad” news you have determined. “I am having a difficult time fixing you. The medicines, the plan of treatment is not doing what we had hoped.”

A part of a physician’s responsibility is to tell the truth as they know it. That truth may not be what the patient and family want to hear BUT consider that knowledge a gift . It is giving the opportunity to address life issues, to do and say what needs to be done and said. That knowledge is a life opportunity, even though nobody wants to hear or acknowledge the message.

Tell that truth in a manner that the patient/family can understand. No medical words, look the person in the eye, sit rather than stand by the patient, speak slowly, gently, sincerely. It’s okay to say “I don’t know.” When addressing end of life issues do not put an exact number on a prognosis. Use months, but not “six“months. Dying is too personalized to be accurate with a number. 

Make recommendations for further care. That can be a referral to palliative care or hospice. Don’t just leave a person and family with no resources after you have told them they can’t be cured.

Palliative care and hospice nurses, social workers and end of life doulas: So often I’ve been told by families “Don’t tell mom the doctors can’t fix her. Don’t tell mom she is going to die sooner rather than later. Don’t tell her she is on hospice” 

It is our job, our responsibility as end of life workers to be honest with our patients. In a “don’t tell mom” situation I first assess where everyone is, who believes what. Then, I address the family’s concern. I tell them I don’t lie or play games, and let them know they can talk to me about anything. I am here to guide and support them and their family through this challenging experience. 

As part of my “don’t tell mom” support, if they would be more comfortable, I won’t address the subject of illness and decline directly. However, if asked, I will answer honestly in a supportive manner. I will be gentle, use my conversation and people skills. I will do my job of supporting a person where they are in this life altering situation.

As difficult as it is to tell someone “we can’t fix you”, to say those words nobody wants to hear, it is our job as health care workers to do so. A person has the right and physicians have the obligation, to tell a person ONCE that they can’t be fixed. What they do with that knowledge is for the person to decide.

They can take the opportunity to address life issues, put their affairs and relationships in order —- or not. BUT the physician has to tell them first. The physician has to have an honest, direct and gentle conversation. The physician has to give the gift before it can be officially acknowledged by the rest of us healthcare workers.

 

HCAOA, Polsinelli, & NAHC Team Up for Home Care Industry Update on March 16

HCAOA has teamed up with Polsinelli and NAHC for a Home Care Industry Update webinar on Thursday, March 16, from 12:00 - 2:00 p.m., EST.

Tune in for a legal update tailored for the Home-Based Care Industry (home health, home care, and hospice providers). This presentation will cover recent government action extending the statute of limitations for investigating and prosecuting certain providers who participated in specific COVID related aid packages and the impact on the home care industry. Aid packages include the Paycheck Protection Program (“PPP”), COVID-19 Economic Injury Disaster Loan Program (“EIDL”), Provider Relief Funds Program (“PRF”) and the Employee Retention Credit Program (“ERC”).  We will provide best practices for preparing for government investigations aimed at providers that leveraged COVID-related aid during the pandemic. 

Also hear an overview of the latest federal legislative and regulatory developments impacting our industry, including the latest developments regarding the Federal Trade Commission’s proposed ban on non-competes, the status of the NLRB’s proposed rule modifying the joint employment standard under the NLRA, and an overview of the DOL’s recent activity, including the status of the proposed change to the independent contractor standard and recent enforcement activity. Biden’s statements in his most recent state of the union address will also be discussed.

Register now. This meeting is free, but registration is required.

 

Get to Know Medicare Home Health

Most older Americans – like Ms. Alice – want to receive care at home as they age. The Medicare Home Health Benefit offers older Americans the opportunity to receive compassionate, personalized, quality care where they feel safe and motivated to improve and maintain their health.

Click the image below to watch Ms. Alice’s story below and share with others! 

 

 

 

CDC Adds Covid-19 Shots to List of Routine Vaccines for Kids and Adults

CNN | By Janelle Chavez

Covid-19 shots are included in new schedules of routinely recommended vaccines released by the US Centers for Disease Control and Prevention on Thursday. The immunization schedules summarize current vaccine recommendations for children, adolescents and adults, but do not set vaccine requirements for schools or workplaces.

Key changes to the schedules, published in the CDC's Morbidity and Mortality Weekly Report on Thursday, include the addition of Covid-19 primary vaccine series and recommendations on booster dose vaccination; updated guidance on influenza and pneumococcal vaccines; and new vaccines for measles, mumps, and rubella (MMR) and for hepatitis B.

The schedule also recommends additional doses of MMR vaccine during a mumps outbreak and administering inactivated poliovirus vaccine in adults who are at an increased risk for exposure to the virus.

The proposed changes were recommended by the CDC's vaccine advisers, the Advisory Committee on Immunization Practices or ACIP, and signed off on by the CDC, which worked with physicians, nurses and pharmacists on the recommendation.

The biggest change, the report's authors told CNN, is incorporating Covid-19 vaccines into both schedules.

"This means COVID-19 vaccine is now presented as any other routinely recommended vaccine and is no longer presented in a special "call out" box as in previous years. This, in a sense, helps 'normalize' this vaccine and sends a powerful message to both healthcare providers and the general public that everyone ages 6 months and older should stay up to date with recommended COVID-19 vaccines (including a booster, when eligible), just as they would with any other routinely recommended vaccine," Dr. Neil Murthy and Dr. A. Patricia Wodi said in a statement.

However, including Covid-19 vaccines on the routine schedule does not mean vaccination will be required by schools. School-entry vaccination requirements are determined by state or local jurisdictions, and not by CDC.

The new recommendations also add the use of PCV15, a pneumococcal conjugate vaccine used to treat bacterial infection recently approved for use in children. Either PCV13 or the higher valent PCV15 may now be used based on the specific pediatric population.

Read Full Article

 

Paying Family Members for At-Home Care of Their Children Found to be a Viable Answer to Healthcare Worker Shortage

Medical Xpress | By Ann & Robert H. Lurie Children’s Hospital of Chicago

A recent study found that a Medicaid program in Colorado can help address the shortage of home healthcare workers for children with complex medical needs by offering family members certified nursing assistant (CNA) training and paying them for at-home medical care their child requires. Results show that children who received family-CNA care were not more likely to be hospitalized than children cared for by a non-family CNA. Children with family-CNA caregivers also experienced greater care continuity since turnover was not an issue as it tends to be with traditional home healthcare workers. Findings were published in the Journal of Pediatrics.

There is a general shortage of healthcare workers nationally across the board, which worsened with the COVID pandemic. The shortage of home healthcare workers has been an even longer standing concern and often drives families to leave a job or reduce work hours to care for their child with complex medical needs. In addition to the financial burden on families, the lack of professional home healthcare services can lead to unnecessarily prolonged hospitalizations and institutionalization.

Some states allow non-parent family members, such as grandparents, to be paid to provide care. But most states do not allow parent guardians to be paid to provide medical care to their children, except for some select programs that make exceptions for parents who are registered nurses (RNs) or licensed practical nurses (LPNs). Illinois Medicaid has committed to finding alternative ways for parents to be paid caregivers and is exploring ways for that to be implemented.

"Our study provides evidence that paid family caregiving as a concept is feasible and can be successfully applied to meet the home care needs of children with medical complexity," said lead author Carolyn Foster, MD, MS, from Ann & Robert H. Lurie Children's Hospital of Chicago and Assistant Professor of Pediatrics at Northwestern University Feinberg School of Medicine. "States should consider adopting policies that promote avenues to allow for parents to obtain CNA or other relevant credentials and to be paid for their child's at-home medical care. Such policies would enable state programs to meet their legal obligation to provide medical services for enrolled children while also reducing family financial strain and providing care continuity for these children."

Dr. Foster and colleagues stress that according to previous research, care continuity results in higher quality care. Broader literature also demonstrates cost savings to the health system with reduced employee turnover. The lack of costs for re-training and onboarding employees may be a source of savings in family CNA programs.

The study compared the characteristics and healthcare utilization of children with medical complexity who received paid CNA care by a family member and by a traditional non-family CNA from 2017 to 2019, as part of the Medicaid program in Colorado. Researchers analyzed de-identified billing claims data for 861 children, including information such as hospitalization frequency and hospital lengths of stay.

"Colorado's family-centered model addresses the significant shortage of healthcare workforce while providing additional income to parents who are compelled to leave work to care for their children. This program may not be a fit for all situations but is a meaningful option for many children going without enough services," said Dr. Foster.

 
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